Searchable abstracts of presentations at key conferences on calcified tissues

ba0004p111 | (1) | ICCBH2015

Is groupwork an effective way to improve transition for young people with osteogenesis imperfecta? A pilot study

Ball Suzanne , Mitchell Ryan

Objectives: Within the National Health Service there is a recognised need for supporting young peoples transition into adult services1. Focus groups and forums have historically been used to identify how to achieve ‘good’ transition between services, from the perspective of patients, carers and professionals. A recent article recommended an individualised programme supporting transition for young people with osteogenesis imperfecta (OI)2. The ai...

ba0006p204 | (1) | ICCBH2017

Is a modified version of the Childhood Health Assessment Questionnaire (CHAQ) a useful tool to identify the level of disability in children with osteogenesis imperfecta?

Ball Suzanne , Roberts Marie , Saraff Vrinda , Sakka Sophia , Shaw Nick , Hogler Wolfgang

Objectives: Different versions of the Childhood Health Questionnaire (CHAQ) have been used in Paediatric Rheumatology since 1994 to establish levels of functional disability. To date, use of the CHAQ has not been reported in Osteogenesis Imperfecta (OI). The aim of this study was to establish if disability scores generated from a modified CHAQ (MCHAQ) correlate with OI severity.Methods: The MCHAQ was developed to reflect the specific needs of children wi...